Thursday, June 30, 2011
Wednesday, June 29, 2011
Tuesday, June 28, 2011
Monday, June 27, 2011
Sunday, June 26, 2011
Saturday, June 25, 2011
I can’t believe it’s been over three weeks since Rick was admitted to the hospital. In some respects it seems like we have been living here for months. In others, it’s like just yesterday we were unpacking from our trip to Tennessee.
The past 7-10 days have really been rough on Rick. They had to start giving him pain meds to make him somewhat comfortable. His throat hurts so much it’s hard to eat and the fever just won’t go away. His white count just isn’t there to help fight everything, so they put him on every known antibiotic, antifungal, antiviral they could to knock the bad guys out. His platelets dropped last Sunday, and his red blood count went right behind them. They had to give him transfusions every day of one of them. These were all expected things, and they warned us he would have to have them at some point. But in the back of your mind, you held out hope he wouldn’t. Friday was the first day he didn’t have to get one. In the middle of it all, he had a terrible reaction to one of the meds which caused an itchy rash all over his body. On a good note, he actually started to have a white count which is a sign that things are going to turn around. We are all just trying to make him comfortable to get through the rough patch and get him home. It’s probably going to be at least another week or so before we can start planning for that.
We continue to be amazed at the nurses and staff here. They all are so concerned and check in on Rick even when they aren’t on this floor. Even Abraham the “flooring engineer” stops by every day. I drop a package of goodies at the desk each day to thank them. They think it is a bribe, but I don’t think you have to bribe them for anything here. It make such a difference when you know it’s not just a job…they truly care.
His room is turning into a photo album of grandkids, cards and Packer gear. Kay and Jeff sent him a Packer care package which perked him up! Every card, letter and phone call is greatly appreciated. I think I’ve told more than one person that we will need a small U-Haul just to move out of this place.
Look for something wonderful and positive on my next update!!! I know it is coming.
Thursday, June 23, 2011
Wednesday, June 22, 2011
Monday, June 20, 2011
Sunday, June 19, 2011
I'd write more but we're kinda busy enjoying the beach. :) Hope everyone is having a fabulous weekend!
Tuesday, June 14, 2011
Today Rick's white count completely bottomed out. He is now at zero. This is expected and means the treatment is right on track. He really felt the effects yesterday and today. He doesn’t have the pep in his step he has had since he has been here. He is fighting it, but knows his limits. We got some good news today. The genetic coding came back that the leukemia is “typical”. This means that the treatment he is receiving is exactly the correct one. There was a possibility that if it was a different mutation, that he would have to start on again on a different chemo. The doctors are still very impressed with his progress and tolerance. Now we just have to wait for the counts to start bouncing back. Then we can start talking about a release date.
Mentally, I think he is doing very well. We continue to laugh, and just take each day as it comes. He amazes me each and every day with his positive attitude. We had to “re-learn” how to play rummy, and I got a Monopoly program for the computer that we started playing last night. We’ve got Xfinity and Netflix on the computer for “movie nights” and the couch is great for a little movie cuddling. I don’t know WHAT Rick would do without his new Kindle. That has been a great source of relaxation and distraction. THANK YOU AGAIN KIMBERLY and MARC!!!
He got more mail today, which really picks him up. I have an agreement with the volunteers at the front desk, and Rick has been successfully getting his mail. Again, everyone thanks so much your thoughts and prayers.
I’ve been making it home every other day or so, and spent about 5 hours in a store doing work yesterday. I can’t imagine what it would be like if I couldn’t stay here with him. Hopefully, he thinks the same thing. I’ve told him if he ever needs his space, just let me know. Marc and Kimberly took me to this awesome sushi restaurant. We took a drive around the neighborhood and checked out the amazing houses. Everything from Victorians to Craftsmans. Oh to have the buckaroos to buy one of those gorgeous houses. But at $1.4M, I think it is a little out of reach…at least for this year ;)
Thanks again for all your support, calls and messages. They are all greatly appreciated and welcomed at any time.
Rick 2 Mutants 0
Absolutely fantastic news so far! We love you guys!
Monday, June 13, 2011
Sunday, June 12, 2011
Thursday, June 9, 2011
Wednesday, June 8, 2011
Tuesday, June 7, 2011
- The Saturday of Memorial Day weekend, Tim, Brenden and I were able to attend my friend Sara's wedding. The weather was beautiful, the food was fantastic, the bride looked gorgeous and the maid of honor speech was the best I've ever heard. However, the one thing that stood out to me about the whole day was the drive into town. Not long after we got into the car, Brenden realized that we were leaving Lauren with Mike and Connie. (She hadn't napped well and I didn't want to ruin a lovely wedding with a screaming baby.) He immediately started bawling and yelling, "I want my Lauren! I love her! I miss my sister!" I'll definitely have to remind him about that when he's a teenager and doesn't like her very much.
- In the past few months they have become closer than I thought they could be. Lauren follows Brenden around like a shadow, constantly trying to do everything he does. She copies all of his noises and wants to sit in his chair all the time. Surprisingly, Brenden has been very willing to share with his sister, even when he's not asked. If he has an ice juice he makes sure to give her bites. When we went to Osakas while Karen was visiting he fed her soup and rice. He even gave her a drink of juice last night because he thought she looked thirsty. Many mornings I'll hear Brenden through the baby monitor, yelling at me that they are awake. When I walk into her room I find both of them in her crib, bouncing around like monkeys. Now that she can bop around in a little dance he holds her hands and dances with her while they giggle like crazy. He's also always worried about her getting sick, especially when it comes to the things she eats. He knows she can't have his milk or his peanut butter sandwiches. Again, I'll have to remind him when he's older that at one time he didn't think his sister was so bad.
- Brenden has always been a ham and since starting preschool his repertoire of songs he sings has become huge. He sings all the time. In Walmart, in his room when he should be sleeping, while he's going to the bathroom, and just randomly walking around the house. This weekend he stayed with my parents while Tim was gone so that Lauren could go get her pictures taken. While on our way to the splash pad on Sunday, my mom texted me and told me to ask him about the song he made up for her. I'm not sure about the words but I think it was "I'm going to church with my grandma!" to some unknown tune. Then he added another line: "My mommy and daddy are taking me to the sprinklers!" When he first started singing it we thought it was a continuation of the first line. It became pretty obvious that he was adding on as he went. It cracked us up!
Monday, June 6, 2011
As most of you know, Rick was diagnosed with a form of Leukemia called APL on Friday after routine blood work. We were extremely lucky to have the doctors and lab personnel that reacted so quickly. He was admitted Friday afternoon and by Saturday morning he had his tests completed, and his first round of chemo started. Today will be day 3 of his chemo therapy, and he could not be more pleased with how he feels. His spirits are high and he can’t thank all the family and friends that have been so supportive. You could not ask for a more wonderful staff than those they have here at Porter Hospital! It has made a world of difference.
Thanks for all your messages and phone calls. He has is phone and computer with him, and found out today that he can continue to work “from home”. He was extremely happy to hear that.
Today is a good day with Rick already doing 3 laps around the floor before I even woke up. He is eating well, and continues to tell everyone…”We are going to kick this thing in the butt and get on with it.”
Rick 1 – Mutants 0
Yes, he has been inhabited by mutant blood cells and after those are kicked out they are going to repopulate his body with normal ones. He's also calling his i.v. cart "Walli" and the glass atrium where he sets up his computer to do work his "corner office." I think this type of upbeat attitude will help to ease the discomfort of the medications and the normal wear and tear of an extended stay in the hospital.
We love you Rick! Keep up the good work!